After my liver decompensated, I fixated on the death sentence. However down some back street of my mind, I kept thinking that life couldn’t be over. I was mad, and determined to make it. I didn’t know how that would
You are going to need a lot of folks to support you with the Hepatitis C Virus. Think of them as your People who Stand by Me with Hepatitis C and Liver Disease team. It will include family, friends, medical,
What a winter it’s been for many of our friends. Me too. I’ve been fighting sinus problems and still can’t take anything but children’s Benadryl. It’s been this way for years. With Hepatitis C, I was afraid to take anything,
I can’t write about my organ donor the way I write about everything else. As a transplant recipient, there simply aren’t enough words in my vocabulary or heart. My dear donor, that beautiful boy who’s pictures I have memorized in
I’ve been battling cavities a lot. Some of it was from Hep C, some may have been medicine or treatment, liver cancer, or the Tace and Ablation. I feel like diuretics and even diet or hepatic encephalopathy make it worse.
In the span of about 5 minutes, my mind can move from doing a routine thing, like scratching my elbow, all the way to something totally ridiculous – say….. moving myself into a cardboard box underneath a bridge. I don’t
“Give me the whole truth” I told the doctor. After hearing that I wouldn’t make it to Christmas, I wanted details, kinda. You and I both know that we can’t take it all in at once. Part of you wants
This blog is a Happy Birthday ihelpc.com celebration. November 12, 2012 was when I first launched Your Best Friends Guide. It started off as a way to organize all of the writing I had done before, and during, treatment for
Getting ready for ANY type of test can be stressful. Getting a Magnetic Resonance Image or MRI means something is probably not going well for you. My MRI with liver disease was how I was diagnosed. It was a hot
Denied for Transplant List. Most of us don’t know how the whole transplant system works. It’s stays out there in a vague corner of our mind. It’s a place that we don’t want to think about. Ever. Then something happens,
I hear a lot from people seeking help for autoimmune liver disease. Trying to figure it out is hard, but most symptoms are the same as any type of liver disease. I know, we can’t lump them all into one
There is something about liver disease and lazy afternoons that make you want to stretch out and settle into a mid-day snooze. If you’re struggling with hepatic encephalopathy, fatigue, joint pain, achy body, and brain fog from liver disease or
I recently got the chance to test – and can finally announce that my new top app for liver health is LiverWELL. From our friends at Hepatitis Victoria, this is the newest technology in the liver disease, and Hepatitis community.
Sleep is a struggle for me. I don’t know what it’s like to doze off quickly, or sleep all night. I’ve tried everything and here are my top 3 tips for better sleep. New studies are showing that 8 – 10
Falling Apart with Hepatitis C Have you ever had a perfectly fine day turn into a hot mess? It happened to me recently. I made it through, and even learned a few lessons. Mostly, I survived. It started when I
Hepatic Encephalopathy Causes Treatments Symptoms I could look you straight in the eye, and yet not be aware of what I was doing. The world inside my head that didn’t always follow reality. Getting drunk produces the same results, but
Take Care of Your Kidneys – If you are going to drown your Hepatitis C or cirrhosis sorrows – do it with water. Kidney disease is not as silent as liver disease, but it sure will sneak up on you
Bring Back That Loving Feeling I see it all the time. So many people are locked inside their own head, and heart, – alone – instead of sharing their lives. “Love hurts,” they say. “I can’t go through it again.”
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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