Denied for Transplant List
Denied for Transplant List. Most of us don’t know how the whole transplant system works. It’s stays out there in a vague corner of our mind. It’s a place that we don’t want to think about. Ever. Then something happens,
Denied for Transplant List. Most of us don’t know how the whole transplant system works. It’s stays out there in a vague corner of our mind. It’s a place that we don’t want to think about. Ever. Then something happens,
After being sick with cirrhosis, going through treatment for Hepatitis C, liver cancer, transplant, and ALL THAT STUFF, I can feel a bit off sometimes. Physically, my hands and heart tremble like little tiny earthquakes are going off inside me.
Bring Back That Loving Feeling I see it all the time. So many people are locked inside their own head, and heart, – alone – instead of sharing their lives. “Love hurts,” they say. “I can’t go through it again.”
World Transplant Games It’s difficult to put into words – being at that door and then coming through to the other side. The door was double and led into a rather crowded room with many machines and a metal table
Some people think I’ve got it all the answers – that everything goes perfect for me. There is this blog thingy that I have somehow managed to keep alive (and award winning) through liver failure, treatments, chemo stuff, and –
Take it Easy: Advice From My Sister When my bottom lip sticks out and tears spill, I’ll simply write the word “cry”. In July of 2014 an ultrasound picked up on cancer trying to take over my liver. My mind scattered out
Turning Down Sweets: Rude or Smart Liver disease from Nash, fatty, autoimmune, PBC, cirrhosis or Hepatitis C can put us in some sticky situations. I threw away a piece of chocolate S’mores cake this week. After taking one sugary bite,
Finding Liver Cancer Up until a couple of years ago, the biggest threat to my life had been the Hepatitis C Virus. I got that “Not Detected” and was so excited. I still had cirrhosis scarring, on my liver, and
Spots on Your Liver With cirrhosis comes scans and look-sees at your liver every 6 months. Lately, I’ve been hearing all this talk about spots on the liver. Is it cancer? Are they nodules? What if it’s just a lesion?
Balancing Hepatitis and Health My life has been spinning since being diagnosed with the Hepatitis C Virus. At first, I ran out of the hospital trying to get away from it. Then I spent the next 6 years coming to
Courage and Confidence with Liver Cancer During my battle with liver cancer, I loved reading all of your personal cards, emails, and messages. How could I possibly respond back? (Picture me typing all night.) Instead, I folded strong words into
Depression during Christmas with Hepatitis C or Liver Disease Christmas is all around us. The nativity, singing of hymns, buying myself a present – all of those traditions bring me comfort and joy. I am celebrating it more than ever
My Fave Free Health Apps for Liver Disease Today’s smart phones have more technology than the Apollo One Spaceship! Have you thought about using your smartphone to improve your health? The applications (apps) can help you get through the ups
Feelings About Dying with Hepatitis C and Cancer [1 Video] Comfortably Numb Video by Pink Floyd click link to open a new window and listen while you read. One of my favorite classic rock songs is Comfortably Numb by Pink
Ethanol Alcohol Ablation for HCC I get these hunches. Call it intuition, inkling, or whatever you want. The tumor was growing again. For several weeks my snooze alarm was getting tapped more frequently. Not even Matt Bellamy motivated me to
Waiting Room Etiquette There is no other time in your life when waiting seems so long as when you’re sick. It doesn’t matter if you’re sitting in a chair at the doctor’s office or waiting for a procedure – it’s
Sleep is kind of like a thought eraser that swipes the day clean. But I frequently wake up in the middle of the night and remember the tumor. One night last August I awoke with the image of big clamps all around my chest cavity. Eyes wide open now, I saw myself lying on a table surrounded by doctors and nurses, my face as white as the fish I had seen floating belly up on the pond last year. I could see my head arching back with a tube tunneling down my throat that clicked and whished while forcing air into my lungs. I blinked hard and then stared at my chest as my breasts moved up and down. I wondered what it would be like to wake up in ICU with that machine on and my hands tied down. Shaking my head with an audible moan, I flung back the covers, and jumped out of bed like the house was on fire.
My heels drummed a hollow beat on the wood floor as I fairly flew to the kitchen. I stood in the dark. I don’t want a liver transplant. The thought of someone dying to keep me alive is more than I can bear. Of course there are a lot of other things that I don’t want. I don’t want to clean the branches up from the last storm. I don’t want to pay taxes or shave my legs. I don’t want cancer.
Social Security Disability with Cirrhosis and Cancer I just got my approval letter. I am officially on Social Security Disability with Cirrhosis and Cancer from Hepatitis C. I have mixed feelings right now. In a sense I’m pretty relieved because I’m
(AASLD) The American Association for the Study of Liver Disease creates info and education to support patients. Doctors and medical staff are invested in helping you liver longer stronger with liver disease.
(Global Liver) Donna Cryer is a dear friend who had a liver transplant while finishing her law degree. Her reach goes out to patients, families, medical providers, pharma and on and she’s global.
(Trio-National) Transplant Recipients is your one stop shop for information for ANY type of transplant candidates, recipients, their families and the families of organ and tissue donors. Lorrinda Gray Davis is the President.
(Trio – Oklahoma) This is Oklahoma’s chapter founded by Lorrinda Gray Davis. I’m the founding VP to our current president Benjamin Babb. For anyone needing support for solid organ, tissue, or eye transplant, we’ve got your back. We’ll truly be your best friend.
(Fatty Liver Foundation) was founded by Wayne Eskeridge to improve the diagnosis, treatment & support of Americans with fatty liver, NAFLD or NASH through awareness, education, screening and patient advocacy.
(Sober Liver Survival) founded by Jenn Leigh Jones is everything you need for sobriety, recovery, PTSD, breaking cycles of addiction and victims of personal violence. She’s just getting SLS off the ground and would love to connect with other people battling alcoholism.
(Say Yes to Hope) Suzanne Lindley is a hope dealer to cancer patients. If you need a fri
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